{"id":1322,"date":"2022-02-12T14:58:43","date_gmt":"2022-02-12T22:58:43","guid":{"rendered":"https:\/\/info.pediatricsdirectory.com\/?p=1322"},"modified":"2023-09-09T13:32:45","modified_gmt":"2023-09-09T17:32:45","slug":"1322-2","status":"publish","type":"post","link":"https:\/\/pediatricscommunity.com\/info\/1322\/","title":{"rendered":"Central Hypoventilation Syndrome"},"content":{"rendered":"\n<div class=\"wp-block-columns is-layout-flex wp-container-3\">\n<div class=\"wp-block-column is-layout-flow\" style=\"flex-basis:25%\"><i class=\"fas fa-clipboard-list clinicaltrial\"><\/i>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow\" style=\"flex-basis:75%\">\n<h4 class=\"wp-block-heading\">OPEN CLINICAL STUDY: Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)<\/h4>\n\n\n\n<p>The purpose of this IRB-approved research study is to implement the NIH Toolbox as a standard measurement of cognitive health in patients with CCHS. Further, the study aims to determine how intrinsic and extrinsic disease factors such as age at diagnosis,&nbsp;PHOX2B&nbsp;mutation type and genotype, and nature of past and present artificial respiratory intervention affect the NIH Toolbox Cognitive scores of individuals with CCHS. Eligible participants will complete a 45-minute NIH Toolbox assessment and parents (or adult participants) will complete an associated, 15-minute Research Electronic Data Capture (REDCap) questionnaire.<\/p>\n\n\n\n<p><strong>MORE INFO:<\/strong> <a href=\"https:\/\/beta.clinicaltrials.gov\/study\/NCT03568669\">ClinicalTrials.gov<\/a><\/p>\n<\/div>\n<\/div>\n<span class=\"tags-links\"><a href=\"https:\/\/pediatricscommunity.com\/info\/central-hypoventilation-syndrome\/\" rel=\"tag\">central hypoventilation syndrome<\/a><a href=\"https:\/\/pediatricscommunity.com\/info\/phox2b\/\" rel=\"tag\">PHOX2B<\/a><\/span>","protected":false},"excerpt":{"rendered":"<p>OPEN CLINICAL STUDY: Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS) The purpose of this IRB-approved research study is to implement the NIH Toolbox as a standard measurement of cognitive health in patients with CCHS. Further, the study aims to determine how intrinsic and extrinsic disease factors such as age at diagnosis,&nbsp;PHOX2B&nbsp;mutation type and genotype, and [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false},"categories":[9,402],"tags":[719,1662],"_links":{"self":[{"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/posts\/1322"}],"collection":[{"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/comments?post=1322"}],"version-history":[{"count":1,"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/posts\/1322\/revisions"}],"predecessor-version":[{"id":5839,"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/posts\/1322\/revisions\/5839"}],"wp:attachment":[{"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/media?parent=1322"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/categories?post=1322"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/pediatricscommunity.com\/info\/wp-json\/wp\/v2\/tags?post=1322"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}